Hi everyone! We arrived back at the hospital today after a lovely weekend at home. I didn't want Sunday to end! It was so nice to have a bit of 'normalcy'. Even got to go to my parent's today which we hadn't been to in a month!
Today we had the big MIBG test which took almost an hour and Tim had to be strapped down to the table with his arms and legs down. He did so well! The nurse said, "kids just don't do this... he's an angel!" So thanks for all the prayers because they worked! He did really well. The part where his head had to be a few centimeters from the machine was brutal as they had to hold his head so still. Here he screamed but even then he was still and that part was only 5 min, then he stopped crying.
Timothy got moved again... this time into a room shared with an anorexic girl... This is kind of a weird match and it will be difficult to listen to the doctors talking with her. I hope this goes okay.
Had a bit of a tough time today as one of the family's we have got to know lost their little 18 month old son today. He went home to be with Jesus where he will no longer have to suffer. We were so happy that the family knows the Lord and that they have accepted it. Please pray for them. Another happy note is that Winston, the little 5 year old who got hit by a pick-up truck, went home today! This is another Dutch family we got to know and will miss. He is almost back to normal after not knowing if he would even have ANY function!! His head took the impact and he was on every machine possible last week. You should have seen him today! It was so exciting! It's amazing the stories you hear here...
Anyways, tomorrow morning around 9:30 is the meeting with the doctors to discuss final diagnosis, staging, risk group and treatment plan. We will keep you posted. Thank you for all your thoughts and prayers as they are certainly helping us get thru this! Love, Shauna